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CALSCALE:GREGORIAN
BEGIN:VEVENT
DTSTART:20180915T120000Z
DTEND:20180915T170000Z
X-MICROSOFT-CDO-ALLDAYEVENT:FALSE
SUMMARY:Walk & Roll for Facioscapulohumeral Muscular Dystrophy
DESCRIPTION:The 1st Annual Walk & Roll to Cure FSHD in beautiful Dublin\, OH!\n\n\n\nThe event is inclusive of everyone.\n\nThe inaugural 'Walk & Roll to Cure FSHD' will convene participants beginning at 8:00 AM on the 15th.\n\nA 5K walk will commence at 9:00 AM from the Dublin Coffman Pavilion and will traverse through a beautiful country setting\, around a pond and back to the pavilion. \n\nThere will be music and festivities for all!\n\nAll of Dublin is invited to share in the excitement and fun of this event!\n\n\n\n\n\nThe FSH(facioscapulohumeral muscular dystrophy) Society's mission is to accelerate the development of therapies while empowering individuals affected by FSHD. "Our goal is to deliver a treatment and cure to our families by the year 2025\," declared the Society's President and CEO\, Mark Stone.\n\nFSHD is among the most prevalent of the nine primary types of muscular dystrophy affecting adults and children. The genetic condition is estimated to affect 870\,000 individuals worldwide and causes progressive weakness\, typically in the face\, shoulder blade\, arms\, legs\, and torso\, but may affect almost any skeletal muscle in the body. There is currently no treatment or cure and approximately one-quarter of patients become dependent on wheelchairs. \n\n\n\n\n\nThank you to all of our participants and generous sponsors Bill Seibert\, Greg and Elizabeth Gerhard\, LCNB National Bank\, Richard Wood\, Sr.\, Hanger Clinic\, CIVISTA BANK\, Aumiller Strategies\, The Winchester Institute\, Schmidt's Restaurant & Hospitality\, and Nationwide Children's Hospital's Research Institute Center for Gene Therapy for helping us reach our goal of $50\,000!
X-ALT-DESC;FMTTYPE=text/html:The 1st Annual Walk &amp\; Roll to Cure FSHD in beautiful Dublin\, OH!<br />\n<br />\nThe event is inclusive of everyone.<br />\nThe inaugural &lsquo\;Walk &amp\; Roll to Cure FSHD&rsquo\; will convene participants beginning at 8:00 AM on the 15th.<br />\nA 5K walk will commence at 9:00 AM from the Dublin Coffman Pavilion and will traverse through a beautiful country setting\, around a pond and back to the pavilion.&nbsp\;<br />\nThere will be music and festivities for all!<br />\nAll of Dublin is invited to share in the excitement and fun of this event!<br />\n<br />\n<br />\nThe FSH(facioscapulohumeral muscular dystrophy) Society&rsquo\;s mission is to accelerate the development of therapies while empowering individuals affected by FSHD. &ldquo\;Our goal is to deliver a treatment and cure to our families by the year 2025\,&rdquo\; declared the Society&rsquo\;s President and CEO\, Mark Stone.<br />\nFSHD is among the most prevalent of the nine primary types of muscular dystrophy affecting adults and children. The genetic condition is estimated to affect 870\,000 individuals worldwide and causes progressive weakness\, typically in the face\, shoulder blade\, arms\, legs\, and torso\, but may affect almost any skeletal muscle in the body. There is currently no treatment or cure and approximately one-quarter of patients become dependent on wheelchairs.&nbsp\;<br />\n<br />\n<br />\nThank you to all of our participants and generous sponsors&mdash\;Bill Seibert\, Greg and Elizabeth Gerhard\, LCNB National Bank\, Richard Wood\, Sr.\, Hanger Clinic\, CIVISTA BANK\, Aumiller Strategies\, The Winchester Institute\, Schmidt&rsquo\;s Restaurant &amp\; Hospitality\, and Nationwide Children&rsquo\;s Hospital&rsquo\;s Research Institute Center for Gene Therapy&mdash\;for helping us reach our goal of $50\,000!<br />\n<br />\n&nbsp\;
LOCATION:Coffman Park Pavilion 5200 Emerald Parkway Dublin\, OH 43017
UID:e.1632.8119
SEQUENCE:3
DTSTAMP:20260403T220024Z
URL:https://www.dublinchamber.org/events/details/walk-roll-for-facioscapulohumeral-muscular-dystrophy-8119
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